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Kylie Skeen

$353 of AUD $300 target.

Raised by 0 people in days for Neuroblastoma Australia Incorporated

Biggest Supporters

AUD $109.00

Penny Skeen

AUD $54.50


Kylie & Roy Skeen






Willow’s Story.

When I noticed that our granddaughter, Willows’, right eye was slightly bulging, nothing could prepare us for the diagnosis her mum (our daughter) and dad would receive.

At the tender age of 22 months Willow had Stage 4 High Risk Neuroblastoma.

This very aggressive cancer begins in immature nerve cells in the adrenal glands and generally by the time it is found it has metastasised to multiple areas of the body, as was Willow’s case.

The next 18 months saw her little body endure 6 rounds of high dose chemo, 12 doses of radiation therapy, surgery, a bone marrow transplant and finally immunotherapy – not to mention the countless blood and platelet transfusions she needed to help her little body cope with the effects of the treatment. Throughout her treatment she remained (for the most part) our smiley, cheeky, happy little Willow.

She is the most resilient little soul I’ve ever known – her Aunty Penny used to comment that “ Willow was kicking cancers butt”. With treatment completed she has just celebrated her 6th birthday and is in remission ( I say that very quietly, not wanting to jinx her ). She is healthy, well, meeting all her childhood milestones and was very excited to start ‘big school’ this year.

This cancer affects infants and is generally diagnosed at about the age of 2 years. It takes from us the highest number of our little ones under the age of five than any other cancer. Research and the funding of it, is key to changing the outlook of this devastating disease.

This is why our family will be supporting Neuroblastoma Australia at Runwest on 31.3.2019 and Run2cure on 2.6.2019.


Any donations made through this platform are secure and will be remitted directly through to Neuroblastoma Australia


Thanks so much for your support!

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Neuroblastoma Australia Incorporated

Neuroblastoma is a devasting childhood cancer with the average age of diagnosis being just two years old. With survival of rates for aggressive neuroblastoma at only 50%, this disease claims more lives of children under the age of five than any other cancer.

We don’t need a miracle; just more research.

Neuroblastoma Australia, is a registered charity founded by families with children affected by the disease and has raised over $1.7 million for research into a cure for this complex cancer which almost exclusively affects young children.

You can make a difference. Help raise funds for research into more effective and less toxic treatments for neuroblastoma today. 

To get involved, or learn more, visit our charity website: 

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Kylie Skeen

for Neuroblastoma Australia Incorporated

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AUD $353 of AUD$300 target

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